Blog Archive

Nick LiBassi: A Profile

By rick1 | January 17, 2020 | 0 Comments

Nick LiBassi grew up in Maywood, NJ and has lived in Rochelle Park since 2009. Nick became a Zoning Board member in 2013 and served in that capacity until the end of 2018.  

Nick sustained a spinal cord injury in 1996. Since that time Nick has worked in the disability community in various capacities. His experience working with consumers on the vendor side as well as his first-hand knowledge regarding advocacy has allowed him to fully comprehend the unique challenges that people with SCI/D (spinal cord injury/disease) face in all aspects of life.

Nick has over 18 years of broad-based professional business experience. Working with Johnson & Johnson for 8 years, Nick was in charge of a specialty national sales team that was tasked with launching new products. In his time with J&J Nick had varying responsibilities that required strong leadership qualities, relationship building skills, and a thorough understanding of the overall business environment.

After his time with Johnson & Johnson Nick helped lead a team within an international executive search firm. He successfully placed numerous professionals at the VP and “C” levels within large organizations such as BASF, DAVOS and Roche.

Nick is currently Vice President of Partnership Expansion for United Spinal Association. He is responsible for several programs and projects that assist the organization in fulfilling its mission. He is experienced in creating programs, developing clear action plans and implementing successful strategies to address needs. Nick works with members throughout the country to ensure they have the resources needed in order to be as independent and successful as possible.

Nick holds a degree in Business Administration, has served on the National Board of Directors for United Spinal Association, and currently serves as a Committee Member on the Disability Advisory Board with Alaska Airlines and as a Community Advisory Board Member for Kessler Institute for Rehabilitation. Recently Nick was appointed by Secretary of Transportation, Elaine Chao to the Air Carrier Access Act Disability Advisory Board. 

Nick was sworn in a Rochelle Park Township Committeeman in January of 2019 and was sworn in as Mayor in 2020. Nick is also the Rochelle Park, NJ Fire Commissioner. 

Abilities Expo – Los Angeles – Booth #1012

By rick1 | January 11, 2020 | 0 Comments

Resources Abound When You Get Connected with Your SCI Community

By Lisa Wells, Cure Medical

Connecting with friends who understand everything that comes with a traumatic spinal cord injury or a life-changing medical condition can be challenging sometimes. That’s why we’re thrilled to introduce you to two organizations—Triumph Foundation and Spinal Network—who unite friends with SCI across Southern California!

Explore Spinal Network’s Resources and Community Programs

Spinal Network is dedicated to providing pathways for success by connecting individuals that have a spinal cord injury with employment and/or educational resources necessary to achieve their individual goals. Their programs typically take place in the Riverside area and in San Diego.

Spinal Network’s Meet & Greet events are a great way to catch up with friends, meet new friends or build upon your support network. Those that are newly injured/diagnosed have an opportunity to hang out with the more seasoned individual asking questions and listening as members all share a story or two.

Find your closest Spinal Network Meet & Greet here.

Come to the Los Angeles Abilities Expo to get involved with the Spinal Network (booth #1012) chapter! Then stop by the Cure Medical booth #447 to find out why Cure Catheters® are so popular with their members.

Disability and Depression

By rick1 | December 17, 2019 | 0 Comments

When you get hurt and suffer a Spinal Cord Injury, you suddenly find yourself in a new world where it feels like you have no control over anything.  You’ve joined a “club” you may have known about, but never expected to be a member of.  All manner of thoughts and feelings may be taking turns occupying your brain.  Some form of depression is a very normal reaction at some point in the adjustment process.  Some people, amazingly, avoid it completely.  “It is what it is, I have no choice but to move on, no point in allowing myself to dwell on it, get depressed, etc.” Not many escape some level of sadness, however, but acknowledging it is difficult.  Your body has just changed in ways you never dreamed of, so the last thing you want to think is that your mind is messed up too.  If depression sets in, don’t ignore it, don’t withdraw, do something to change it.    

Typical symptoms of depression include feeling sad, low energy, trouble sleeping, weight loss or gain, suicidal thoughts, loss of interest, moodiness, and loss of concentration.  People are amazingly resilient and usually the depression lifts. There are ways to accelerate the process of adjustment:

  • Put one foot (wheel!) in front of the other and force yourself to do the things that you know usually are enjoyable.
  • Talk with someone outside your usual circle (we often don’t want to burden family or close friends) with whom you can safely say, “This is really hard!”
  • Get with other folks with SCI in a support group or socially.
  • Get out of the house and socialize, exercise, get into disabled sports, make plans to get back in school or take some classes in something you were always interested in but never got around to.
  • Start thinking about what employment would look like.

If you’ve had depression in the past, you may have a blueprint for how you dealt with it, although now it is likely a much more difficult and challenging circumstance than any you have encountered. 

If the symptoms continue to be severe – if nothing makes sense, nothing seems worth it, you are not doing the things you can do to move on (mastering self-care, advocating for yourself, getting out in the community, enjoying friends or family) it may be time to talk to someone – a counselor or therapist, clergy, or maybe a peer support person you met in Rehab.  If you are having suicidal thoughts it’s definitely time.  (Crisis Line 888-724-7240).  As much as we feel pressured to be stoic and stay strong, we all have a limit on how much we should go it alone. 


Richard Green, LCSW Sharp Rehabilitation Hospital, San Diego

Complex Rehabilitation Technology (CRT) Update

By rick1 | December 2, 2019 | 0 Comments

December 20, 2019

CRT Stakeholders and Friends,

We have something extra to be grateful for this Holiday season! Tonight the President signed into law H.R. 1865 that includes permanent protections for Complex Rehab Manual Wheelchairs and their accessories/components. This is a great win in our collective advocacy to protect access to Complex Rehab Technology (CRT). 

The included CRT provisions will permanently exempt Complex Rehab Manual Wheelchair bases from the Medicare Competitive Bidding Program (CBP). Additionally, there is an 18-month suspension in the current application of CBP payment rates to Complex Rehab Manual Wheelchair accessories. The suspension is effective January 1, 2020 to June 30, 2021 which will allow for further discussions to achieve a permanent resolution. 

Our sincere thanks to our CRT champions Representatives John Larson (D-CT) and Lee Zeldin (R-NY) and Senators Bob Casey (D-PA) and Rob Portman (R-OH) for their leadership and hard work. We’re also grateful to Energy & Commerce Committee Chair Frank Pallone (D-NJ) and Ranking Member Greg Walden (R-OR), Ways & Means Committee Chair Richie Neal (D-MA) and Ranking Member Kevin Brady (R-TX), and Senate Finance Committee Chair Chuck Grassley (R-IA) and Ranking Member Ron Wyden (D-OR).  


This shows when the CRT Community comes together things can get done! Recognition and thanks to the ITEM Coalition, United Spinal Association, NCIL, National Multiple Sclerosis Society, Christopher and Dana Reeve Foundation, Paralyzed Veterans of America, Spina Bifida Association, Clinician Task Force, RESNA, Abilities Expo, APTA, AOTA, and all the other consumer, disability, and medical professional organizations who invested their time in educating and advocating. Thanks also to our NCART members, dedicated consumer advocates, and to our industry partners AA Homecare, NRRTS, US Rehab, and the state associations for their significant contributions.

In summary, thanks to everyone who has played a part. It wasn’t quick and it wasn’t easy, but everyone’s outreach and persistence paid off. We hope you are able to enjoy the Holiday break and look forward to building on this win as we continue the work to protect access for people with disabilities who depend on CRT.

Regards, 

Don ClaybackExecutive Director | NCARTdclayback@ncart.us | www.ncart.us

Peer Mentor Program

By rick1 | December 1, 2019 | 0 Comments

Our Peer Mentor program is off to a great start with thirteen trained and certified peer mentors. Lindsey Elliott, peer mentor trainer with the United Spinal Association, came out to San Diego to facilitate the full day training. The feedback we received was 100% positive and it was great to see so many people completely engaged.

I want to thank the Student Ability Success Center at San Diego State University for hosting our event. They were so accommodating throughout the planning process and the day of. Thanks also to Which Wich for the great sandwiches and box lunch.

We are making plans for a great Peer Mentor section on our website, one where you will be able to meet our peer mentors and watch an introductory video from each. If you are have need for peer mentor services, please click the button below..

Grassroots Advocacy

By rick1 | November 22, 2019 | 0 Comments

Grassroots Advocacy: Change Starts with You

By rick1 | October 29, 2019 | 0 Comments

Every day, members of the United Spinal community face unequal access or exclusion due to physical barriers and ineffective policies, practices, or procedures. When frustrations arise in healthcare, mobility, education, work or limitations in quality of life, through grassroots advocacy, your personal experience becomes the seed that can bring about necessary change.

What Is Grassroots Advocacy?

Grassroots advocacy is an awareness initiative generated by concerned individuals that builds a community of support both on the ground and online. People seeking a solution use their own voices to contact organizations or local, state, and/or federal legislators regarding an issue that affects them directly. As a grassroots advocate, each of us has an opportunity to ‘plant seeds’ of concern and cultivate the kind of attention and action that solves problems. By sharing a personal story of need, your own experience and effort are what nurtures a movement to grow, like grass, and affect change across the country.

Anyone Can Be a Grassroots Advocate

Grassroots advocates are members and allies of a directly affected community, like you and me. This means, anyone who is personally affected by an issue has the power to act as a grassroots advocate. Many believe this is strictly the job of direct lobbyists, or those who politically advise on behalf of organizations and maintain professional lobbyist credentials, but it is not. There are also patient advocates, who support individuals on a case-by-case level in a medical setting. Grassroots advocates, instead, voluntarily speak on behalf of themselves and others for local, state or national policy change.

Planting Your Own Grassroots

When it comes to grassroots advocacy and addressing the barriers we face living with physical disabilities, we have to ask ourselves an important question: do I accept this or is there something I can do to make this situation better for myself and for others? If the answer is yes, it’s time to start planting your own seeds of change.

If you are interested in getting more involved with grassroots advocacy, speak with your United Spinal chapter’s advocacy representative and consider joining our Grassroots Advocacy Network: https://www.unitedspinal.org/grassroots-advocates-rolling-together/

— Brook McCall, MPH, United Spinal’s Grassroots Advocacy Manager

National Disability Employment Awareness Month

By rick1 | October 1, 2019 | 0 Comments

This year’s NDEAM theme is The Right Talent, Right Now, which underscores the essential role that workers with disabilities play in America’s economic success, especially in an era when historically low unemployment and global competition are creating a high demand for skilled talent.

“Every day, individuals with disabilities add significant value and talent to our workforce and economy,” said U.S. Secretary of Labor Alexander Acosta. “Individuals with disabilities offer employers diverse perspectives on how to tackle challenges and achieve success. Individuals with disabilities have the right talent, right now.”

I feel that one of the most intimidating factors for a potential employer and one of the most confusing aspects of the job interview for both parties is reasonable accommodation. The employer might be thinking, “what is this going to cost, will it create a financial hardship?” The interviewee may not know how to broach the subject or when during the interview process this should take place. My own personal thoughts regarding this and again this is just my thoughts, you should have put a good amount f time thinking about this, what do you really need in a workplace to do the job. This is not always just about the physical layout, you have to think about things like start time, restroom breaks and the fact that it will probably take longer than your able bodied counterpart.

If you go to this page you will find a few valuable resources to get you started on your journey and remember we are just a call/email away should you need help or support. https://spinal-network.org/employment-preparedness/

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